I’m sure by now you’ve all seen at least one , if not a hundred videos of people you know all the way to celebrities voluntarily pouring ice water on themselves. Seems crazy, no?
Well it may seem so, but really it’s for an excellent cause and purpose.
First, the cause: (from the website) Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed. To find out more, please visit www.alsa.org
Second, the purpose: It’s simple…To Raise Awareness
While the money raised is insane and amazing (last I heard, over 80 million), it’s awareness that first fuelled this campaign. Here is the story:
Now I’ve read a few articles in the past few days criticizing this campaign (it doesn’t take long for the haters to surface, does it?), but I can’t jump on that wagon. Some claim it’s not an urgent enough disease to warrant such massive fundraising – tell that to Peter Frates. Or really anyone suffering or watching someone suffer from this disease.
Nevermind that, does a disease or illness need to infect the masses to warrant awareness or incredible fundraising? Why?
I not only love the campaign, but support the cause. I was anxious to be nominated for the challenge as was Jonah, because he wanted to get involved. Which is one of the main reasons I love it – people are getting involved. We are willingly dumping buckets of ice water over our heads to participate. We are also nominating people to spread awareness and we are donating. It’s really the recipe for a most perfect campaign and I am happy to support it. And I am thrilled to see my friends and family, and especially our kids getting involved.
But please know this, it is not the only cause I am in support of, nor do I think it’s the only one worthy of my (or your) donations. There are so many, some well known and others not so well known, that are in need. And what’s important to you may not be important to others – it’s based on our experiences – nobody is wrong. None are better or more important than another and all have value and purpose. Raise awareness and donate where you feel best doing so.
For me and my family, ALS was one that we felt drawn to.
So for your viewing pleasure, here we are (I have no idea why I was speaking so strangely):
(Hopefully they work – but if they don’t, just head over to Cute Like Me on Facebook and watch there. I had to do it this way because they uploaded sideways)